Saturday, May 19, 2012

Sat- May 19 - DAY +2

Connor made some friends at the Kohls house. This is DAY +1 and he is at the park having fun.  Thankfully the park was not very crowded and the weather was perfect for some fun and popsicle.

Friends from OH and Hawaii playing Monopoly!

Everything is still going great!  Connor still has some nausea and requires fluids at home. He just doesn't want to drink too much and only prefers water to soda or juices.  I think he is scared of vomiting.  He still has a decent appetite and I don't think he has lost any weight since we started - a miracle! Both of Connor's friends left today so it was a longer day for him and us and he wasn't as brave at taking his oral meds.  We all met every night at around 9 pm for all the kids to take their meds and Connor would just take all of his without a word.  He felt bad for the boy b/c he had to eat 6-8 pills a night. He has an entire lunch bag filled with meds.  We are trying to convince Connor to start practicing swallowing pills but he is scared of choking... 

He did vomit a little today so we will have to add another medication to his list. He will need continue with his zofran.  The doctors' have warned us that the GVHD and the side effects of the chemo will start to on DAY +8 to +20.  Please pray for NO or minimal side effects. 

Thank you everyone for your continued prayers and support.  All your cards and notes and gifts have given him a sense of gratitude for all the wonderful friends and always puts a smile on his face.  He is still a little self-conscious about his hair but once he gets used to it, we would love to face time and skpe with our pals.


7 comments:

Liz said...
This comment has been removed by the author.
Liz Koh said...

Thank you for all of these awesome updates Steph! God bless Connor as well as you and your husband! Here's to more of God's blessing on this journey!!

Paul Jang said...

Thinking and praying for you all, especially for you Connor!

Jennie said...

Stephanie, I am in awe of your strength and fortitude. Thanks for sharing this journey with us, Connor is one amazing little boy!

Steve Safford said...

Thank you so much for the update...we are so glad to hear how well things are going. Connor is an amazing young boy--great to see him outside playing with friends in the gorgeous weather. We are praying for him all the time!

Janelle said...

I love reading your blog and continue to pray for all of you. The strength that you and Connor exhibit is amazing! I can't find your cell number and know you aren't home so this is my only way to communicate with you. Please know we are thinking and praying for you! May God continue to hold all of you close on this journey!

Peter C said...

Great to hear and see pics! Everyone is praying for Connor and Andrew!!