Monday May 14, Day -3

I can't believe this week is almost here! It has been such a long ordeal and we are so close to getting his stem cells this week!  How crazy is that?  Some kind hearted soul in Japan is getting ready to donate his cells tomorrow, I pray that God will watch over him and his family as he gives of himself so generously and bless them. 

We were released from the hospital a little after 9pm.  Connor was so happy to get out and have some fresh air and we sat outside and enjoyed the moonlight and fresh air for a while in front of our house.  It was a beautiful night.  Everything was going well, we were having a somewhat early night, getting to bed before midnight and all was in order. At 2 am, Connor started to projectile vomit again and started to run a fever of 102.5.  We were praying that we did not have to go to the ER, called the stem cell unit and they told us to give him tylenol and watch and wait until our appt at 8am.  We did as told but the fever was not subsiding so Steve and I were just using wash cloths to make him comfortable and Connor was doing his best to try and get some sleep.  Needless to say, none of us really went back to sleep for too long but we managed to avoid the ER last night and came to the stem cell unit.  He was given more zofran, benadryl, steroid and an antibiotic just in case he was developing an infection and he promptly fell into a deep sleep while receiving his ATG.   He now has no appetite, he is scared of eating b/c he doesn't want to throw up and he even said no to popsicles and gummy bears ( he must really be feeling yucky). 

It's another beautiful spring day here in Chicago and Connor and his dad are out for a walk.  Connor is too weak to walk so he is in his mcclaren stroller which we have had since he was 4 years old.  Hopefully the fresh air will do him some good and that he will be able to work up some sort of appetite for dinner.  I am at "home" trying to figure out something to feed him for dinner. The biggest challenge is trying to get him to drink more liquids so that he doesn't have to be hooked up to an IV at night.  He has been such a good boy.  Even in the midst of his fever and vomitting yesterday, he managed to say thank you and give me sweet smiles and to say sorry for making a mess.  I was afraid that he was getting a little too spoiled in here but am glad to see that his tenderness and kindness is still there.

His bedhead from sleeping off his benadryl today :)

Please pray that he stays fever free tonight and that he is able to keep down his food and liquids tonight.  Hope everyone had a wonderful mother's day weekend!