Sun May 13th, Day -4

Picture with his cousin Hannah before the vomitting on Sat.

So I spoke too soon yesterday about Connor not having any side effects.  He started vomitting from the cumulative effects of chemo yesterday (Sat) 2pm all over himself.  It must have also coincided with his anti-anxiety medication, ativan, wearing off because my sweet little boy was in a rage for half an hour or more. He was just so angry and just yelling whatever came to his head and most of his anger was directed at our nurse Nikki who had the unfortunate duty of giving him the tylenol that made him puke.  And then the rest of his anger was toward the hospital and the person who built the hospital and that he will never like him and will never be grateful towards the "stupid" person who built the hospital and there is "nothing that you can do about it".  (as he was shouting the "s" word, he gave me this defiant look and had a little smirk when I didn't scold him for it.)  He still has a decent appetite and asked for a hotdog at midnight. 


Sunday was pretty much the same, woke up to more ativan. The ativan is necessary so that he won't have seizures from his bulsufan.  I requested something else, anything else, but this is the one drug that will counter the seizures. Not looking forward to it wearing off tonight.   He was also given more zofran, tylenol, benadryl and a steroid to counter the effects of the new chemo drug ATG.  He vomitted again today but it wasn't as dramatic as yesterday, we managed to have the bucket handy the mess did not get on him.  And unfortunately, it was our same nurse Nikki but he managed to contain himself this time :) I think he was embarrassed about yesterday and was being extra polite to her today.  Most of his day consisted of playing x-box with his dad and sleeping off the benadryl. The benadryl really helped to contain the rage from the ativan tonight and there was no rage, just a little sadness and homesickness.  He did great with the ATG, they had to monitor him every 15 minutes for the 1st 2hours to make sure that he didn't have any adverse reactions such as a rash, fevers, blood pressure, heart rate and it all went as smoothly as possible except for the vomitting so now they are giving him zofran every 4 hours instead of 6.    We get to go home to the Kohls house tonight at around 9pm.  YEAH