May 24, DAY +7

I can't believe we are a week post-transplant.  Despite our ordeal yesterday, today is a brand new day and Connor is feeling and acting normally again.  He was out of commission all day yesterday, he was sluggish and pretty much slept all day yesterday until about 5pm. He woke up at 5pm, talkative and alert and he stayed awake until 1:30 am- ready to play!  He had energy to play his video games again and was able to eat a little bit of dinner- a huge accomplishment! 

I know that I am a little biased as I write this but Connor is such an amazing boy!  He is finally learning to look at the bright side of things and was finding all the different reasons why it was good to be in the hospital versus staying at Kohl's house.  He liked being able to take a bath at the hospital, having his own room, the rooms are bright and sunny and he gets to eat chocolate ice cream 2x a day with his meds and he even says that the meds taste better here :)   (At Kohl's house he is on IV fluids at night and he wakes up 3-4 times a night to pee).  I wonder if it is the full nights sleep that is helping with his mood- whatever the reason, I am just really proud of him and so happy that he is choosing to see the glass as half-full.

His numbers are still really low, his red blood cell count is reallylow so he is getting 380 ML of blood transfusion today.  This is to ensure that he gets enough oxgen to his organs and also in case he spikes another fever, it won't stress his heart too much.  His platelets are creeping up so it looks like we may avoid a platelet transfusion- hopefully.  And his white blood cell counts are still non-existent but all par for the course.

I wanted to share this video of Connor having a laughing fit at 12:30 am while watching AFV.    We had a great time and we laughed for a good 30 minutes.  Enjoy! ( i hope it works- it was really cute)