We've hit a bump in the BMT road...Connor was feeling warm to the touch since last night but he still was a bundle of energy so we weren't too concerned. We just took his temperature every hour or so and it was hovering around 99.3 to 100.3. We were told that if he his temperature hits 100.5 for over an hour than we needed to call or if it hit 101.5. His temp would go up and come back down to 99 but at 6:30 this morning, it hit the dreaded 101.7. We ended up at the E.R. by 6:50 and ran into some problems with his PICC line - neither of the lines would flush. The nurses had difficulty drawing out enough blood from one line to do his CBC and the blood cultures to see if there is an infection on his lines. They ended having to use TPA on both lines to get the blood unclogged - it was a 2 hour process but we are thankful that it cleared up and that he did not need to get an additional IV or shots. (Connor would see great injustice in that). He was given more IV fluids and a round of antibiotics and then we were finally admitted to 4West. We will be in-patient for at least 48 hours to confirm that there is no infection and he also has to stay fever free for 48 hours before we can be released. Connor has had no energy today, I had to beg to get him to eat a bite of pb&j and some chicken noodle soup and he also declined on twix and kit kats and pepsi. He really isn't feeling well- my poor baby...
We knew that this was to be expected but you just always hope that you will be the very lucky one where the Bmt is just so smooth and we can avoid platelets, transfusions and ER visits. Even with the knowledge, it always comes as a shock as the fever escalates and you are walking to the ER. How does the human brain fool itself into such denial? I was still hoping that we would be released today. On the bright side, he is getting a lot of rest today and hopefully he can sleep thru the night.
Thank you all for your many prayers and words of encouragement! It really means so much to us.
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13 comments:
The Hartmans are praying! Josh misses Connor so much already! I'll have Josh write to you this weekend, Connor!
You are doing great, Connor! What a brave boy you are!
Love, Stacey Hartman
Prayers ... missing you.
As I think of you every minute of the day and say my prayers, I wish I could take some of this away. I really miss you guys! Saying more prayers and sending our love <3
Love you all! saying lots of prayers.
Praying for u Connor- we think of u often. Love the Dillhoff's
Oh sweet sweet Connor. I am so sorry.... I wish so badly I could take this away from him and you and Steve. Tomorrow is a brighter day... you have to believe that.
Love you guys,
Teri
I'm sorry to hear about the bump in the road to recovery. My name is Mike, you don't know me. I've been monitoring Connor's condition ever since it came to my attention here at a church called New Mercy. I will be praying for Connor as have many members of our church. He is the reason why I did a cheek swab in hopes that I would be a match. Do not worry and stay strong.
praying...praying...praying for you. please give him a little squeeze from all of us.
Sending lots of hugs and prayers for Connor! Stay positive and your faith will keep you strong. Love, Laura Oakley and Nathan
We pray for the "bump" to flatten out and for it to be an easy path from now on. Connor is just precious in the picture sleeping. Much love to you all, heather
We're constantly thinking of you guys. The boys are praying for Connor on their own now and telling us later that they did. Connor, you're teaching Noah and Caleb how to be tough and brave! Thanks!
Stay strong Connor! We're praying...
The Cho's
Praying for you, Connor! How is he doing today?
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