Saturday, June 9, 2012

June 9 +23 -The big Move

It is getting harder to write the Day + as the days get larger and we are still not seeing engraftment.  His ANC is at 109 so similar to yesterday but his monocyt numbers which were so encouraging yesterday went down drastically today.  The doctors have told us that we shouldn't worry at this time but that they are also a little bit concerned. I asked when should we start freaking out and he told us by day +30.  That is only 7 days away and his body has to do so much in that time frame so needless to say Steve and I are very anxious. 

We moved to the new hospital early this morning.  We were the 2nd ambulance to arrive but the first ones to make it inside the hospital and to this floor.  The Child Life specialists are going to make him an award or something to give Connor to make his stay extra special.  He always wanted a perfect attendance award so he is going to love this!  The Lurie hospital is AMAZING.  The chapel has the most beautiful stained glass windows, there is a fire truck in the hospital and the elevators have interactive buttons and just very spacious and nice. It'll be nice to come back and explore for our annual check ups. 


Well, we are all settled in, it took a while for him to take a nap but he is finally sleeping so it means another long night since he will wake at 11pm to take his meds and then play.

4 comments:

Anonymous said...

What a wonderful picture, Connor is so handsome. So glad you like the new hospital. I'd imagine that the + days are getting very hard...but we are hoping and praying for something awesome in these next 7 days. Love, heather

Nancy said...

Sending my love to you dude. First one in the hospital - you are part of Chicago's history now!!! Missing you and can't wait til we can get together. I plan on winning every game we play, just so you know!
Nanny

Mags, Christian & Ela said...

To ONE STRONG family, we are sending our love and prayers. Connor looks great (I love the shaved hair!) I love you guys and think of you at all times. Cant wait for all of you to be back!!!

Janelle said...

What a great picture! So glad to hear that Connor likes it in the new hospital and that he made history! Praying for God's intervention in the next 7 days and for continued strength for all of you.