I hope you had a wonderful week. We have really enjoyed being at home and Connor has been very happy to be home. He commented that he would endure the pain of the mucositis in his intestines as long as he was home - didn't realize how homesick he was :( We have been to the hospital twice this week, for blood, platelets, IVIG and patamadine-they were both very long days. What is amazing is that his energy level was so high that you would never know that his hemoglobin and platelets were low. It truly is amazing how resilient children are- they just don't know that they are sick. I am finally happy to report some good news- with the help of G-CSF, his counts are slowly coming back up. His neutrophils are higher than before we went into transplant and his white blood cells have doubled. We are hoping that they will continue to stay up and continue producing cells when we stop the G-CSF in 2 days.
Please continue to lift Andrew and his family up in prayers. The doctors have informed the family that his lungs are not improved and all they can do at this time is to keep Andrew comfortable. They were also told to gather the family and prepare to say your "goodbyes". It is every parents worst nightmare and two very genuinely nice people have to live it. Please pray for peace, comfort and guidance as they make this heart wrenching decision.
Have a wonderful weekend.
Many Thanks -