June 7, Day +21

I wish I had good news to share but unfortunately this continues to be another rough week. The only bright spot to this day is that Connor has stayed fever free for the past 24 hours and all of his cultures are turning out negative for infection. The bad news is that he is still in a great amount of pain, he is hooked up to a PCA machine that continuously delivers DILANTIN (a pain medicine) and then he has a button that he can press for a boost every 8 minutes. They have had to increase the dosage three times since yesterday. He had a CT scan performed yesterday and he was such a trooper drinking cups and cups of apple juice and laying still for the scan and luckily it didn't show any fissures or abcess but some inflamation on the lower rectum. We think that this inflamation is also causing some problems with his urge to urine and he is having a hard time and has symptoms similar to a UTI. He is trying to make the best of it still but he was screaming out in pain for an hour today and it is very difficult to watch him go thru this. We hope that this will pass soon. We have moved out of the Kohls house and now situated at the Ronald Mcdonald house in Lincoln Park, we were able to get a room with our own bathroom, this is especially important now that Connor has all of these bladder/bowel issues. It also looks like we will not be discharged by tomorrow and we will be one of the patients that will be transported from the old hospital to the new hospital on Sat, it will be Connor's first and hopefully last ride in an ambulance. His ANC numbers are going up but not significant enough to say that it is engrafting, the doctors refer to it all going in the right direction and that all of this is expected. We are still really hoping that he will engraft soon- it will give us some peace of mind. Thank you all!