Tuesday, July 31, 2012

Day +76 -

I am so sorry that I have not updated sooner but I was so tired of updating the blog with bad news and didn't want to be Debbie Downer so was waiting for something good to write about.  The good news is that we are at a steady holding pattern.  Connor has been on and off G-csf a couple of times for 5 day stretches and his numbers went sky high (WBC=11,000) but as soon as we took him off G-csf it dropped down to 1,000.  It is much better than the 300 range that he was at when we were discharged and so he is no longer on low bacteria diet and we have been enjoying fresh berries and cherries and it is just so nice to have him enjoy food.  Connor continues to need blood and platelets on a regular basis so his PICC line will stay in and we are still unsure about school in the next few weeks.  We are praying that he will be able to start with his classmates.

I hope everyone is having a happy summer!
Thank you so much for all the love and support!


Anonymous said...

Praying for Connor to get well!!

Natalie Flood said...

Trying to figure out what this means -is it status quo for now and he lives life like before the BMT? Hoping his numbers continue to get higher and higher.

Peter Cho said...

Thanks for sharing Steph. Glad to hear things are getting better. We continue to think about pray for you regularly!